生命的邂逅~一位自閉兒母親的心路歷程與增能之敘事探究

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Title:	生命的邂逅~一位自閉兒母親的心路歷程與增能之敘事探究
Other Titles:	The narrative inquiry on the adaptation experiences and empowerment of the mother of a child with autism
Authors:	蔣美珠;Chiang, Mei-Chu
Contributors:	淡江大學教育科技學系碩士在職專班徐新逸;Shyu, Hsin-Yih
Keywords:	中度自閉症兒童;母親;增能;敘事探究;Moderate Autistic Child;Mother;Empowerment;narrative inquiry
Date:	2015
Issue Date:	2016-01-22 14:45:27 (UTC+8)
Abstract:	本研究採用敘事探究進行，以Riessman（1993）使「經驗再呈現」的五個層級為敘事探究架構。主要資料為訪談逐字稿、相關私人文件和研究者省思札記。研究主要目的在描繪母親和中度自閉兒的故事並且從增能的觀點深入的剖析自閉兒母親內在能力轉變的心路歷程以及探索其中的關鍵因素。本研究的結論與發現如下： 1.母親與中度自閉症兒子的故事：依照時間順序分成五個主題呈現母親在教養自閉兒的過程中遇到的教養問題，母親如何陪伴孩子度過難關，並且逐漸完成各種任務。 2.從增能的觀點探討自閉兒母親的心路歷程之初步發現，其經歷的階段分別為（1）覺察個人的無力感與問題；（2）觀念的建立；（3）發展資源與技巧的行動；以及（4）呈現結果階段。在歷程中母親和自閉兒兩者的生命是互相影響並且成長的，更進一步發現母親的增能是不斷發生與循環，是一個沒有終點的進行式。 3.從自閉兒母親增能的關鍵因素之分析與討論中發現，可從五個方面來闡述影響自閉兒母親增能的關鍵因素，包括（1）個人的內在知覺部分（2）個人與環境的人際互動關係（3）外在資源的獲得（4）參與的行為以及（5）個人信仰。這五個方面培養出母親的自我效能感，並且強化改變的動機以及增加行動的動力。更深一層探討會發現這些關鍵要素沒有一定的優先順序，但是在過程中要素會彼此互相牽扯影響，形成過程中能力改變的重要因素。 iii 4.從身為老師、基督徒與母親的角度呈現研究者的省思與收穫最後，研究者依據研究結果，針對政府機關、教育單位、同樣家有自閉兒的母親以及未來研究提出相關建議。 The study used the in-depth interviews of the narrative inquiry approach based on the Riessman’s theory to elaborate upon the adaptation experiences and empowerment of the mother of a moderate autistic child.Three data were collected which were the transcripts of interviews, the personal documents from the mother of a moderate autistic child and the diary from the researcher. The main findings of this study were as follows: 1. The histories of the mother and a moderate autistic child, including her parenting course, adapted experiences and the empowering transition, were described. 2. The transition towards mother''s empowerment had the following four stages: (a) awareness of powerlessness and problems; (b) establishing concepts; (c) taking action to develop the resources and skills; and(d) outcome. Mother and child''s life affected each other and grew together. Further, the transition towards mother''s empowerment was a uniquely individual and ongoing process, and did not produce a fixed end point. v 3. The components of mother''s empowerment were as follows: (a) awareness of positive views; (b) support from people; (c) access to valued resources; (d) action of participation; and (e) personal belief. As shall be seen, these components provided the mother of a moderate autistic child with an opportunity to increase her own motivation, and the sense of self-efficacy. Moreover, the components of mother''s empowerment in the empowering process were interrelated and involved each other. 4. The reflection of the researcher was presented, which was about the role of a teacher, a Christian and a mother. Finally, based on the results and discussion of this study, the suggestions were proposed for government agencies, educational institutions, the mother of an autistic child and future research.
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